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    April  11, 2016


Challenges Underlying Palliative Care

Dying is an integral part of life, as natural and predictable as being born. However, it becomes difficult when human body is clutched by incurable and life limiting illness. Especially, when untreatable infirmity grab a young child diagnosed with hematological or oncological disorders. Palliative care becomes crucial at such tedious times and patient needs help at every minute of the day. Palliative care doesnít only deal with the physical need, but also encircles psychological, spiritual and social needs of a client. Moreover, it is a philosophy and highly structured system that deliver best possible care and quality of life irrespective of stage of disease.At such critical time family serves as a primary caregiver and support system to the patient. It acts as a cushion for an individual. However, when primary care giver becomes heedless, it increases patientís suffering and psychological turmoil.

To ease the pain and to provide quality of life to patients who are dying, it is recommended that cognitive-behavioral family therapy as well as counseling sessions should be arranged for patient and families. Also, the family should be accustomed that both the parents are responsible for the inheritance of certain diseases. Moreover, support group should be made for such families to motivate them for better involvement in patient care. Besides, such families must be given references about cancer hospital where such children can be treated free of cost. Programs and studies should be done to evaluate the economic cost of child and family and to help families with financial burden.

Saima Bhimani
Registered Nurse
Aga Khan University Hospital
Stadium Road Karachi



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